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Chris Ely

 

June 5th, 2016

 

Battle Island Golf Course

2150 NY-Route 48, Fulton, NY 13069

9:00 A.M. Start

Event Flyer

 

Teams of 4 - $260

Team captains must register the entire team at the same time. Once the captain has registered, please click 'Add Family Member' icon to enter the other 3 members. Choose the 'Add a crew member' registration type for the other 3 members.

 

Individuals - $70

Don't have a team, we'll find one for you!

 

BBQ Lunch - $20

For non-golfers.

 

Chris Ely famChris Ely fam 2Chris.jpg

 

Christopher Ely was so much more than just a cancer patient fighting Glioblastoma. To so many people he was an amazing friend, son, brother, grandson, cousin, nephew, uncle, and most importantly a devoted husband and father to his two sons. He was my soul mate. He worked hard everyday at Raymond Handling Consultants to provide for his family and was beside himself when he was unable to work and take care of us like he so desperately wanted to do. When he wasn’t working he could have been found at the golf course, most of the time sharing his passion with his family, unlike most men who use it as an escape. He was different. He knew what was important to him and that was his family. 

July 22nd, 2015 Chris was sent for an MRI after having many recurring painful headaches where they found what they referred to as “lesions” in two spots in his brain. After a biopsy in Lakeland Chris was diagnosed with stage 3 brain cancer (Anaplastic Astrocytoma). One tumor in the cerebellum and the other in the right temporal lobe that were deemed inoperable. He was told to stay and just do the basic chemotherapy and radiation through Lakeland’s local cancer center, but we weren’t settling for basic. We wanted to fight the disease and win so we talked with doctors at Duke, Sloan Kettering, and MD Anderson in Texas. After loads of research and registrations we left for MD Anderson in Texas. 

August 25th, 2015 MD Anderson performed another biopsy on the second tumor and declared it to be stage 4 brain cancer (Glioblastoma). Immediately following this biopsy Chris also suffered from some severe hydrocephalus (pressure and swelling in his brain). He was in a comatose state for about two and a half weeks before really waking back up only to find that he no longer possessed the balance to walk and his vocal chords were damaged. We spent the remaining 6 weeks in Texas while he underwent radiation and intense physical, speech, and occupational therapy at MD Anderson. I’ve never seen anyone work harder than he did to try and get his life back. 

November 17th, 2015 we packed up everything we had accumulated and drove back home to Florida so we could seek some local expertise at Moffitt Cancer Center in Tampa, FL for the next steps in his treatment. We continued to go to local outpatient OT and PT and received some amazing physical therapy from a good friend that came to our home. He began his first round of Temodar chemotherapy pills December 9th. We also opted to try the newer Novocure Optune cap so he began that December 24th. We had a wonderful Christmas with a lively Chris who felt wonderful that day. For one day we had him back. Then when he woke the day after Christmas he couldn’t get rid of his horrible headache. That evening while in bed Chris’s pain had gotten so bad that he was rushed to the hospital, but the tumor had already bled throughout his brain and it was too late. We lost the most amazing man any of us have ever known.